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xia-gibbs society open board meeting
On 17th June 2023, Xia-Gibbs Society hosted an Open Board Meeting online to provide an update to Xia-Gibbs Syndrome families.
We enjoyed meeting you all and sharing the great progress we’ve made together! We hope you were able to understand the challenges we face and the hard work that is ahead of us…..we value your support!

The presentation was recorded for those who could not attend and can be accessed below, with the presentation slides available here.

You can find out more about the work of Xia-Gibbs Society, including our annual Xia-Gibbs Society Research Grant Award, here.

To request information about the XGS Patient Registry, please complete this form.

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