In March 2020 families of persons with XGS, researchers and clinicians will gather in Florida, USA, for the third XGS…
https://ghr.nlm.nih.gov/condition/xia-gibbs-syndrome
On behalf of the Xia-Gibbs Society, we’d like to thank you again for your support! It is greatly appreciated and,…
Congratulations to the research team at the Human Genome Sequencing Center at Baylor College of Medicine, who have published their…
Arika Estep regularly updates this blog about caring for her son Emmett, who was diagnosed with Xia-Gibbs Syndrome in December…